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Culturally and linguistically diverse patient participation in glioma research

Version 2 2024-06-06, 05:21
Version 1 2023-06-07, 01:47
journal contribution
posted on 2024-06-06, 05:21 authored by Z Lwin, A Broom, R Cosman, Ann LivingstoneAnn Livingstone, K Sawkins, P Good, E Kirby, ES Koh, E Hovey
Abstract Marginal communities, such as culturally and linguistically diverse (CALD) patients, have significantly lower rates of recruitment, accrual, and retention in cancer clinical trials. A combination of language and cultural barriers means that trial participation from CALD communities remains at suboptimal levels, which in turn favors research findings that are biased towards therapeutic effects or toxicities within the context of non-CALD populations. Here we outline some key challenges and implications for CALD patient participation in glioma research in countries such as Australia, where English is the language of governance and health services implementation. We highlight multistakeholder interventions to improve both investigator recruitment and participation of CALD communities in future glioma research, particularly in this era when global migration has come of age. Enhancing research participation of CALD communities ensures not only wider understanding of genetic heterogeneity to improve glioma outcomes but also equity in access to care.

History

Journal

Neuro-Oncology Practice

Volume

1

Pagination

101-105

Location

England

ISSN

2054-2577

eISSN

2054-2585

Language

en

Publication classification

C1.1 Refereed article in a scholarly journal

Issue

3

Publisher

Oxford University Press (OUP)

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