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Health-related quality of life in children with low language or congenital hearing loss, as measured by the PedsQL and Health Utility Index Mark 3

journal contribution
posted on 2020-02-01, 00:00 authored by Ha LeHa Le, S Petersen, F Mensah, Lisa GoldLisa Gold, M Wake, S Reilly
© 2019 ISPOR–The Professional Society for Health Economics and Outcomes Research Objectives: To examine health-related quality of life (HRQoL) in young children with low language or congenital hearing loss and to explore the value of assessing HRQoL by concurrently administering 2 HRQoL instruments in populations of children. Methods: Data were from 2 Australian community-based studies: Language for Learning (children with typical and low language at age 4 years, n = 1012) and the Statewide Comparison of Outcomes study (children with hearing loss, n = 108). HRQoL was measured using the parent-reported Health Utilities Index Mark 3 (HUI3) and the Pediatrics Quality of Life Inventory 4.0 (PedsQL) generic core scale. Agreement between the HRQoL instruments was assessed using intraclass correlation and Bland-Altman plots. Results: Children with low language and with hearing loss had lower HRQoL than children with normal language; the worst HRQoL was experienced by children with both. The lower HRQoL was mainly due to impaired school functioning (PedsQL) and speech and cognition (HUI3). Children with hearing loss also had impaired physical and social functioning (PedsQL), vision, hearing, dexterity, and ambulation (HUI3). Correlations between instruments were poor to moderate, with low agreement. Conclusions: Children with low language and congenital hearing loss might benefit from interventions targeting overall health and well-being, not just their impairments. The HUI3 and PedsQL each seemed to provide unique information and thus may supplement each other in assessing HRQoL of young children, including those with low language or congenital hearing loss.

History

Journal

Value in Health

Volume

23

Pagination

164-170

Location

Amsterdam, The Netherlands

Open access

  • Yes

ISSN

1098-3015

eISSN

1524-4733

Language

eng

Publication classification

C1 Refereed article in a scholarly journal

Issue

2

Publisher

Elsevier

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