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Information systems and healthcare XXVIII : the information needs of family carers in collaborative healthcare

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journal contribution
posted on 2008-01-01, 00:00 authored by Lemai NguyenLemai Nguyen, G Shanks, F Vetere, S Howard
While the important role of family carers has been increasingly recognized in healthcare service provision, particularly for patients with acute or chronic illnesses, the family carer's information needs have not been well understood or adequately supported by health information systems. In this study, we explore the information needs of a family carer by analyzing the extensive online diary of a Vietnamese family carer supporting his wife, who was a lung cancer patient. The study provides a deep understanding of the information needs of the family carer and suggests a four-stage information journey model including identification, searching, interpretation and information sharing, and collaboration. A number of themes emerge from the study including the key role of the carer, information filtering by the carer, information sharing and collaboration, and the influence of Vietnamese culture. The paper concludes with a discussion of the requirements for health information systems that meet the needs of family carers.

History

Journal

Communications of the association for information systems

Volume

23

Pagination

179 - 192

Location

Atlanta, Ga.

Open access

  • Yes

ISSN

1529-3181

Language

eng

Publication classification

C1 Refereed article in a scholarly journal

Copyright notice

2008, Association for Information Systems