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Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people
journal contribution
posted on 2022-11-25, 00:53 authored by J Luke, P Dalach, L Tuer, R Savarirayan, A Ferdinand, J McGaughran, Emma KowalEmma Kowal, L Massey, G Garvey, H Dawkins, M Jenkins, Yin ParadiesYin Paradies, G Pearson, CA Stutterd, G Baynam, M KelaherAbstractGlobally, there is a recognised need that all populations should be able to access the benefits of genomics and precision medicine. However, achieving this remains constrained by a paucity of data that quantifies access to clinical genomics, particularly amongst Indigenous populations. Using administrative data from clinical genetic health services across three Australian jurisdictions (states/territories), we investigate disparities in the scheduling and attendance of appointments among Aboriginal and/or Torres Strait Islander people, compared to non-Indigenous people. For 14,870 appointments scheduled between 2014–2018, adjusted Multivariate Poisson Regression models revealed that Aboriginal and/or Torres Strait Islander people were scheduled fewer appointments (IRR 0.73 [0.68–0.80], <0.001) and attended at lower rates (IRR 0.85 [0.78–0.93], <0.001). Within this population, adults, females, remote residents, and those presenting in relation to cancer or prenatal indications experienced the greatest disparity in access. These results provide important baseline data related to disparities in access to clinical genomics in Australia.
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Journal
Nature CommunicationsVolume
13Article number
4966Pagination
1-11Location
London, Eng.Publisher DOI
ISSN
2041-1723eISSN
2041-1723Language
EnglishPublication classification
C1 Refereed article in a scholarly journalIssue
1Publisher
Nature Publishing GroupUsage metrics
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No categories selectedKeywords
BARRIERSBREASTCANCER-DIAGNOSISCARECOLONIZATIONDESCENTDIVERSITYINDIGENOUS PEOPLEMultidisciplinary SciencesScience & TechnologyScience & Technology - Other TopicsSURVIVALWOMENAdultAustraliaFemaleHealth ServicesHumansIndigenous PeoplesNative Hawaiian or Other Pacific IslanderPregnancyRacial GroupsClinical Research3 Good Health and Well Being
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