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Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in Australia

journal contribution
posted on 2018-10-02, 00:00 authored by B Hemsley, S McCarthy, N Adams, A Georgiou, S Hill, Susan BalandinSusan Balandin
Background The aim of this review was to explore the legal, ethical, and rights issues surrounding use of the Australian My Health Record (MyHR) by people with communication disability.

Method We undertook a narrative review of the legislation and research affecting the implementation of MyHR in populations with communication disability.

Results Use of MyHR by people with communication disability will require careful consideration in relation to (a) capacity and consent; (b) roles of nominated or authorised representatives in the system; and (c) the way decisions are made in relation to the use of MyHR, including supported decision-making for people with intellectual disability.

Conclusion Legal and ethical issues in the use of MyHR by people with communication disability centre on legal rights and equal access. These issues must be addressed if people with communication disability are to have full access to their legal rights and access in exercising personal choice and control in the use of MyHR.

History

Journal

Journal of Intellectual & Developmental Disability

Pagination

1 - 9

Publisher

Routledge

Location

Abingdon, Eng.

ISSN

1366-8250

eISSN

1469-9532

Language

eng

Publication classification

C Journal article; C1 Refereed article in a scholarly journal

Copyright notice

2017, Australasian Society of Intellectual Disability