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Patient preferences may be indicative of normative issues in dementia research
© 2017 IOS Press and the authors. All rights reserved. Robillard and Feng highlight incongruence between patient preferences and the procedural aspects of research ethics as they relate to protocols for dementia research. Their findings break ground for a reassessment of how research ethics, researchers, and participants (including patients and caregivers) approach participation in dementia research. However, it is unclear whether patient preferences may also herald a normative gap between how dementia research is being conducted and how it should be done. This response uses one of Robillard and Feng's findings to illustrate how descriptive empirical data might be reinterpreted into normative questions that reframe current practices in the context of dementia research.
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Journal
Journal of alzheimer's diseaseVolume
59Issue
1Pagination
11 - 12Publisher
IOS PressLocation
Amsterdam, NetherlandsPublisher DOI
ISSN
1387-2877eISSN
1875-8908Language
engPublication classification
C1 Refereed article in a scholarly journalCopyright notice
2017, IOS Press and the authorsUsage metrics
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