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Stakeholder satisfaction with the Australian Rheumatology Association Database (ARAD)

journal contribution
posted on 2009-01-01, 00:00 authored by A Briggs, L March, R Van Den Haak, N Hay, L Henderson, Bridget Murphy, L Wengier, M Lassere, A Bendrups, R Buchbinder
Background: The Australian Rheumatology Association Database (ARAD) is a voluntary national registry for monitoring the long-term benefits and safety of biological disease-modifying anti-rheumatic drugs (bDMARDs) for inflammatory arthritis. Both rheumatologists and patients contribute data to the ARAD.

Objective: To evaluate the satisfaction of patients and rheumatologists with the ARAD.

Methods
: Cross-sectional surveys were distributed to a random sample of 100 community-dwelling ARAD patients in 2007 and to rheumatologists attending the 2007 AustralianRheumatologyAssociation (ARA) annual scientific meeting.

Survey questions included items about the usefulness of the ARAD, workload for participants, frequency of questionnaires, and experience of contact with ARAD staff.

Results
: A total of 92.5% of patients perceived the ARAD as very important (scoring 9-10 on a numeric rating scale). Patients reported minimal difficulty in completing questionnaires, and 95.0% indicated that a 6-month interval between questionnaires was reasonable. Of responding rheumatologists, 32.3%, 62.1%, and 53.8% indicated that the ARAD was very important (scoring 8-10) with respect to clinical information, research, and the profession, respectively, while 68% of those participating in the ARAD reported that the workload required to enroll patients was manageable and 30% found it difficult or onerous.

Conclusion
: Key stakeholders in the ARAD view it as an important resource and are satisfied with its operations. Efforts will be directed towards assisting those rheumatologists who find the associated workload difficult and to improving the perceived clinical value of information available from the ARAD.

History

Journal

The patient : patient-centered outcomes research

Volume

2

Issue

1

Pagination

61 - 68

Publisher

Wolters Kluwer Health

Location

Chester, England

ISSN

1178-1653

eISSN

1178-1661

Language

eng

Publication classification

C1.1 Refereed article in a scholarly journal

Copyright notice

2009, Adis Data Information

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