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The experience of mothers supporting self-determination of adult sons and daughters with intellectual disability

journal contribution
posted on 2020-05-01, 00:00 authored by B Curryer, R J Stancliffe, M Y Wiese, Angela DewAngela Dew
Background: The right of people with disability to be self-determining, to live a life of their choosing, is increasingly recognized and promoted. For adults with intellectual disability, support to enable self-determination may be required. This is often provided by family, yet little is understood about the experience of providing such support. Methods: An interpretative phenomenological analysis (IPA) of eight individual, semi-structured interviews with mothers was conducted, to understand the meaning given to their experience of supporting self-determination of their adult son or daughter with intellectual disability. Results: Three superordinate themes were identified: (a) support context; (b) continuum of support roles; and (c) mother's personal concerns. Conclusion: Mothers of adults with intellectual disability experience an ongoing sense of responsibility to balance competing rights and concerns as they support self-determination. This complex, interdependent relationship results in roles that may facilitate, guide, influence and at times restrict choice and control.

History

Journal

Journal of applied research in intellectual disabilities

Volume

33

Issue

3

Pagination

373 - 385

Publisher

John Wiley & Sons

Location

Chichester, Eng.

ISSN

1360-2322

eISSN

1468-3148

Language

eng

Publication classification

C1 Refereed article in a scholarly journal