martin-theinvolvementofpatient-2016.pdf (848.48 kB)
The involvement of patient organisations in rare disease research: A mixed methods study in Australia
journal contribution
posted on 2016-01-12, 00:00 authored by D Pinto, Dominique MartinDominique Martin, R ChenhallThe involvement of patient organisations in rare disease research: A mixed methods study in Australia
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Journal
Orphanet Journal of Rare DiseasesVolume
11Issue
1Article number
ARTN 2Publisher
BIOMED CENTRAL LTDLocation
EnglandPublisher DOI
ISSN
1750-1172eISSN
1750-1172Language
EnglishPublication classification
C Journal article; C1.1 Refereed article in a scholarly journalCopyright notice
2016, The AuthorsUsage metrics
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No categories selectedKeywords
Science & TechnologyLife Sciences & BiomedicineGenetics & HeredityMedicine, Research & ExperimentalResearch & Experimental MedicineRare diseasesPatient organisationsResearchAustraliaResearch policyPatient and public involvementConsumer involvementADVOCACY ORGANIZATIONSTRANSLATIONAL RESEARCHSCIENTIFIC-RESEARCHBIOMEDICAL-RESEARCHCLINICAL-RESEARCHINCREASING VALUEHEALTH RESEARCHREDUCING WASTENATIONAL PLAN
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