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The transition from pediatric to adult health care services for young adults with a disability : an ethical perspective

journal contribution
posted on 2003-01-01, 00:00 authored by Susan Bailey, B O`Connell
Young children with disabilities and their carers or parents tend to form a long-term dependent relationship with a paediatrician throughout childhood At some stage when the young person with a disability reaches early adulthood, the relationship is severed This paper draws upon recent research undertaken by the authors that describes the difficulties experienced by young people with disabilities as they go through the transition from paediatric care to adult mainstream health care services. The purpose of this article is to present the argument that the dependent, paternalistic relationship that tends to exist between young people with disabilities (and/or their carers) and paediatricians throughout childhood does not facilitate the successful negotiation of adult mainstream health care services, nor optimally promote the well-being of these young people with disabilities. It is proposed that the promotion of autonomy (or self-determination) via a well planned transition program will increase the likelihood that young adults with disabilities and/or their carers will be empowered to successfully negotiate the current mainstream health care system in Australia, and will enhance the well-being of young adults with disabilities.

History

Journal

Australian health review

Volume

26

Issue

1

Pagination

51 - 56

Publisher

Australian Healthcare Association

Location

Sydney, N.S.W.

ISSN

0156-5788

eISSN

1449-8944

Language

eng

Publication classification

C1 Refereed article in a scholarly journal

Copyright notice

Reproduced with the specific permission of the copyright owner.

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