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Valued Outcomes in the Cancer Experience (VOICE)(TM): Development and validation of a multidimensional measure of perceived control
journal contributionposted on 2023-02-12, 23:01 authored by Alexandra K Zaleta, Erica E Fortune, Melissa F Miller, Eva YuenEva Yuen, Shauna McManus, Karen Hurley, Mitch Golant, Sara Goldberger, Lillie D Shockney, Joanne S Buzaglo
Abstract Objective Enhancing cancer patients’ sense of control can positively impact psychological well-being. We developed and assessed the psychometric properties of Valued Outcomes in the Cancer Experience (VOICE)TM, a measure of patients’ perceived control over key personal priorities within their cancer experience. Methods VOICE construction and testing were completed in three phases with separate participant samples: (1) item generation and initial item pool testing (N = 459), (2) scale refinement (N = 623), and (3) confirmatory validation (N = 515). Results A 21-item measure was developed that captures cancer patients’ sense of control in seven key domains: (1) Purpose and Meaning, (2) Functional Capacity, (3) Longevity, (4) Quality Care, (5) Illness Knowledge, (6) Social Support, and (7) Financial Capability. VOICE demonstrated adequate internal consistency (full-scale α = 0.93; factor α = 0.67–0.89) and adequate to strong convergent and discriminatory validity. Significance of results VOICE measures cancer patients’ perceived control across a diverse range of personal priorities, creating a platform for elevating patient perspectives and identifying pathways to enhance patient well-being. VOICE is positioned to guide understanding of the patient experience and aid the development and evaluation of supportive care interventions to enhance well-being.
JournalPALLIATIVE & SUPPORTIVE CARE
Publication classificationC1 Refereed article in a scholarly journal
PublisherCAMBRIDGE UNIV PRESS
Science & TechnologyLife Sciences & BiomedicineHealth Policy & ServicesHealth Care Sciences & ServicesCancer experiencePatient outcomesPatient perceptionsPatient preferencesPerceived controlQUALITY-OF-LIFEBREAST-CANCERWOMENUNCERTAINTYPERCEPTIONMORTALITYAPPRAISALCRITERIAILLNESSIMPACTCancerClinical Research3 Good Health and Well BeingPublic Health and Health Services not elsewhere classified