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'I don't feel like I'm in this on my own': peer support for mothers of children with intellectual disability and challenging behaviour

journal contribution
posted on 2019-09-01, 00:00 authored by Angela DewAngela Dew, Susan Collings, Leanne Dowse, Ariella Meltzer, Louisa SmithLouisa Smith
This article reports on the peer support experiences of mothers with a son or daughter with intellectual disability and challenging behaviour. Engagement in parent peer support programs can improve family quality of life and may have multifaceted benefits at the interpersonal, intra-individual self-change and sociopolitical levels. Thirteen mothers were interviewed about their experiences of participating in a parent peer support program. Thematic analysis focused on the process elements of the program that contributed to its effectiveness in providing support to parents. There were three process-related themes: the role of a paid coordinator, diversity of engagement strategies and matching of peer support partners. Mothers appreciated the opportunities provided to engage in a range of strategies tailored to individual preferences, time and capacity constraints, supported by the paid coordinator. One-to-one peer support proved difficult to sustain given the challenges mothers faced in their day-to-day lives.

History

Journal

Journal of intellectual disabilities

Volume

23

Issue

3

Pagination

344 - 358

Publisher

SAGE Publications

Location

London, Eng.

eISSN

1744-6309

Language

eng

Publication classification

C1 Refereed article in a scholarly journal

Copyright notice

2019, The Author(s)