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'I don't feel like I'm in this on my own': peer support for mothers of children with intellectual disability and challenging behaviour
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posted on 2019-09-01, 00:00 authored by Angela DewAngela Dew, Susan Collings, Leanne Dowse, Ariella Meltzer, Louisa SmithLouisa SmithThis article reports on the peer support experiences of mothers with a son or daughter with intellectual disability and challenging behaviour. Engagement in parent peer support programs can improve family quality of life and may have multifaceted benefits at the interpersonal, intra-individual self-change and sociopolitical levels. Thirteen mothers were interviewed about their experiences of participating in a parent peer support program. Thematic analysis focused on the process elements of the program that contributed to its effectiveness in providing support to parents. There were three process-related themes: the role of a paid coordinator, diversity of engagement strategies and matching of peer support partners. Mothers appreciated the opportunities provided to engage in a range of strategies tailored to individual preferences, time and capacity constraints, supported by the paid coordinator. One-to-one peer support proved difficult to sustain given the challenges mothers faced in their day-to-day lives.
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Journal
Journal of intellectual disabilitiesVolume
23Issue
3Pagination
344 - 358Publisher
SAGE PublicationsLocation
London, Eng.Publisher DOI
eISSN
1744-6309Language
engPublication classification
C1 Refereed article in a scholarly journalCopyright notice
2019, The Author(s)Usage metrics
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