Quality of life of Australian family carers : implications for research, policy and practice Burton-Smith, Rosanne, McVilly, Keith R., Yazbeck, Marie, Parmenter, Trevor R. and Tsutsui, Takako 2009, Quality of life of Australian family carers : implications for research, policy and practice, Journal of policy and practice in intellectual disabilities, vol. 6, no. 3, pp. 189-198, doi: 10.1111/j.1741-1130.2009.00227.x. Attached Files Name Description MIMEType Size Downloads Title Quality of life of Australian family carers : implications for research, policy and practice Author(s) Burton-Smith, Rosanne McVilly, Keith R. orcid.org/0000-0002-9753-9031 Yazbeck, Marie Parmenter, Trevor R. Tsutsui, Takako Journal name Journal of policy and practice in intellectual disabilities Volume number 6 Issue number 3 Start page 189 End page 198 Total pages 10 Publisher Wiley-Blackwell Publishing Place of publication Malden, Mass. Publication date 2009-09 ISSN 1741-1122 1741-1130 Summary Abstract As part of an international,multicentered project, the burden of care, health, and subjective well-being experienced by select Australian family carers supporting a relative with disability at home were investigated. Some 448 family carers residing in New South Wales and Tasmania completed a battery of instruments, including a self-report demographic survey, the Family Caregiver Burden Inventory, the General Health Questionnaire, and the Personal Wellbeing Index. Respondents were predominantly females (mean age = 48 years), married, and supporting a son or daughter with an intellectual disability (mean age = 18 years). Although caring for their family member was not perceived to be a burden, respondents reported notable limitations on their social networks and social activities. They reported higher levels of unemployment than would be expected for the general population and were over represented in lower income groups. They reported seriously low levels of mental health and personal well-being when compared with the general population. The findings revealed that this group of family carers were at high risk of social and economic disadvantage and at high risk of mental health challenges. Social policy makers and service providers should take these factors into account, both in the interests of promoting the health and well-being of the carers and considering the long-term needs of family members with disability who rely on family carers for daily support when designing services. Language eng DOI 10.1111/j.1741-1130.2009.00227.x Field of Research 170113 Social and Community Psychology Socio Economic Objective 970117 Expanding Knowledge in Psychology and Cognitive Sciences HERDC Research category C1 Refereed article in a scholarly journal HERDC collection year 2009 Copyright notice ©2009, International Association for the Scientific Study of Intellectual Disabilities and Wiley Periodicals, Inc. Persistent URL http://hdl.handle.net/10536/DRO/DU:30018401 Document type: Journal Article Collections: Faculty of Health School of Psychology Related Links Link Description Connect to published version (restricted access) Go to link with your DU access privileges     Unless expressly stated otherwise, the copyright for items in DRO is owned by the author, with all rights reserved. Versions Version Filter Type Mon, 17 Aug 2009, 10:32:06 EST Mon, 17 Aug 2009, 10:35:10 EST Mon, 17 Aug 2009, 10:35:55 EST Mon, 17 Aug 2009, 10:37:25 EST Tue, 18 Aug 2009, 09:27:07 EST Wed, 18 Nov 2009, 14:40:02 EST Thu, 26 Nov 2009, 11:42:03 EST Mon, 02 Aug 2010, 12:20:17 EST Mon, 16 Jun 2014, 12:27:16 EST Thu, 10 Jul 2014, 11:16:56 EST Thu, 10 Jul 2014, 11:17:41 EST Mon, 29 Sep 2014, 11:41:55 EST Filtered Full Citation counts:   Cited 18 times in TR Web of Science Cited 25 times in Scopus Search Google Scholar Access Statistics: 699 Abstract Views, 2 File Downloads  -  Detailed Statistics Created: Mon, 17 Aug 2009, 10:32:04 EST by Rachael Wilson