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Quality of life of Australian family carers : implications for research, policy and practice

Burton-Smith, Rosanne, McVilly, Keith R., Yazbeck, Marie, Parmenter, Trevor R. and Tsutsui, Takako 2009, Quality of life of Australian family carers : implications for research, policy and practice, Journal of policy and practice in intellectual disabilities, vol. 6, no. 3, pp. 189-198, doi: 10.1111/j.1741-1130.2009.00227.x.

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Title Quality of life of Australian family carers : implications for research, policy and practice
Author(s) Burton-Smith, Rosanne
McVilly, Keith R.ORCID iD for McVilly, Keith R. orcid.org/0000-0002-9753-9031
Yazbeck, Marie
Parmenter, Trevor R.
Tsutsui, Takako
Journal name Journal of policy and practice in intellectual disabilities
Volume number 6
Issue number 3
Start page 189
End page 198
Total pages 10
Publisher Wiley-Blackwell Publishing
Place of publication Malden, Mass.
Publication date 2009-09
ISSN 1741-1122
1741-1130
Summary Abstract As part of an international,multicentered project, the burden of care, health, and subjective well-being experienced by select Australian family carers supporting a relative with disability at home were investigated. Some 448 family carers residing in New South Wales and Tasmania completed a battery of instruments, including a self-report demographic survey, the Family Caregiver Burden Inventory, the General Health Questionnaire, and the Personal Wellbeing Index. Respondents were predominantly females (mean
age = 48 years), married, and supporting a son or daughter with an intellectual disability (mean age = 18 years). Although caring for their family member was not perceived to be a burden, respondents reported notable limitations on their social networks and social activities. They reported higher levels of unemployment than would be expected for the general population and were over represented in lower income groups. They reported seriously low levels of mental health and personal well-being when compared with the general population. The findings revealed that this group of family carers were at high risk of social and economic disadvantage and at high risk of mental health challenges. Social policy makers and service providers should take these factors into account, both in the interests of promoting the health and well-being of the carers and considering the long-term needs of family members with disability who rely on family carers for daily support when designing services.
Language eng
DOI 10.1111/j.1741-1130.2009.00227.x
Field of Research 170113 Social and Community Psychology
Socio Economic Objective 970117 Expanding Knowledge in Psychology and Cognitive Sciences
HERDC Research category C1 Refereed article in a scholarly journal
HERDC collection year 2009
Copyright notice ©2009, International Association for the Scientific Study of Intellectual Disabilities and Wiley Periodicals, Inc.
Persistent URL http://hdl.handle.net/10536/DRO/DU:30018401

Document type: Journal Article
Collections: Faculty of Health
School of Psychology
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Citation counts: TR Web of Science Citation Count  Cited 18 times in TR Web of Science
Scopus Citation Count Cited 25 times in Scopus Google Scholar Search Google Scholar
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Created: Mon, 17 Aug 2009, 10:32:04 EST by Rachael Wilson

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