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Developing a web-based information resource for palliative care : an action-research inspired approach

Street, Annette F., Swift, Kathleen, Annells, Merilyn, Woodruff, Roger, Gliddon, Terry, Oakley, Anne and Ottmann, Goetz 2007, Developing a web-based information resource for palliative care : an action-research inspired approach, B M C medical informatics and decision making, vol. 7, no. 26, pp. 1-13, doi: 10.1186/1472-6947-7-26.

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Title Developing a web-based information resource for palliative care : an action-research inspired approach
Author(s) Street, Annette F.
Swift, Kathleen
Annells, Merilyn
Woodruff, Roger
Gliddon, Terry
Oakley, Anne
Ottmann, Goetz
Journal name B M C medical informatics and decision making
Volume number 7
Issue number 26
Start page 1
End page 13
Publisher BioMed Central
Place of publication London, England
Publication date 2007-09-14
ISSN 1472-6947
Summary Background : General Practitioners and community nurses rely on easily accessible, evidence-based online information to guide practice. To date, the methods that underpin the scoping of user-identified online information needs in palliative care have remained under-explored. This paper describes the benefits and challenges of a collaborative approach involving users and experts that informed the first stage of the development of a palliative care website.

Method : The action research-inspired methodology included a panel assessment of an existing palliative care website based in Victoria, Australia; a pre-development survey (n = 197) scoping potential audiences and palliative care information needs; working parties conducting a needs analysis about necessary information content for a redeveloped website targeting health professionals and caregivers/patients; an iterative evaluation process involving users and experts; as well as a final evaluation survey (n = 166).

Results : Involving users in the identification of content and links for a palliative care website is time-consuming and requires initial resources, strong networking skills and commitment. However, user participation provided crucial information that led to the widened the scope of the website audience and guided the development and testing of the website. The needs analysis underpinning the project suggests that palliative care peak bodies need to address three distinct audiences (clinicians, allied health professionals as well as patients and their caregivers).

Conclusion :
Web developers should pay close attention to the content, language, and accessibility needs of these groups. Given the substantial cost associated with the maintenance of authoritative health information sites, the paper proposes a more collaborative development in which users can be engaged in the definition of content to ensure relevance and responsiveness, and to eliminate unnecessary detail. Access to volunteer networks forms an integral part of such an approach.
Notes This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Language eng
DOI 10.1186/1472-6947-7-26
Field of Research 111708 Health and Community Services
111711 Health Information Systems (incl Surveillance)
Socio Economic Objective 920211 Palliative Care
HERDC Research category C1.1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2007, Street et al
Free to Read? Yes
Use Rights Creative Commons Attribution licence
Persistent URL http://hdl.handle.net/10536/DRO/DU:30019365

Document type: Journal Article
Collections: Faculty of Health
School of Nursing and Midwifery
Open Access Collection
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Created: Fri, 11 Sep 2009, 12:17:41 EST by Goetz Ottmann

Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.