The experiences and needs of family carers of people with diabetes at the end of life

Savage, Sally, Dunning, Patricia, Duggan, Nicole Frances and Martin, Peter 2015, The experiences and needs of family carers of people with diabetes at the end of life, Journal of hospice & palliative nursing, vol. 17, no. 4, pp. 293-300, doi: 10.1097/NJH.0000000000000162.

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Title The experiences and needs of family carers of people with diabetes at the end of life
Author(s) Savage, Sally
Dunning, PatriciaORCID iD for Dunning, Patricia
Duggan, Nicole Frances
Martin, PeterORCID iD for Martin, Peter
Journal name Journal of hospice & palliative nursing
Volume number 17
Issue number 4
Start page 293
End page 300
Total pages 8
Publisher Lippincott, Williams & Wilkins
Place of publication Philadelphia, Pa.
Publication date 2015-08
ISSN 1522-2179
Keyword(s) carers
education needs
end of life
palliative care
Science & Technology
Life Sciences & Biomedicine
Summary ABSTRACTDiabetes is a common, increasingly prevalent chronic disease. Many people requiring palliative care have diabetes. Diabetes requires lifelong self-care tasks. Family carers frequently perform these tasks when the person with diabetes is no longer able to perform them, but there is a lack of information about carers’ needs to enable them to undertake their new care tasks. The study aimed to collect information from family carers of people with diabetes requiring palliative care about their views and experiences of managing a family member’s diabetes at the end of life and identify their needs to enable them to undertake diabetes care tasks. Data were collected during individual, semistructured interviews with 10 family members caring for a person with diabetes receiving palliative care. The 4 key themes identified were as follows: I didn’t know what to do: it’s a big responsibility; I need education; and it’s important to manage diabetes. Family members/carers feel anxious about their increasing responsibility when caring for their family member’s diabetes and need information and education to help them monitor and interpret blood glucose levels, mange high or low blood glucose levels, and administer glucose-lowering medicines safely and confidently.
Language eng
DOI 10.1097/NJH.0000000000000162
Field of Research 111702 Aged Health Care
1110 Nursing
1117 Public Health And Health Services
1199 Other Medical And Health Sciences
Socio Economic Objective 920104 Diabetes
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2015, Lippincott Williams & Wilkins
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