Use of the My Health Record by people with communication disability in Australia: A review to inform the design and direction of future research

Hemsley, Bronwyn, Georgiou, Andrew, Carter, Robert, Hill, Sophie, Higgins, Isabel, van Vliet, Paulette and Balandin, Susan 2016, Use of the My Health Record by people with communication disability in Australia: A review to inform the design and direction of future research, Health information management joural, vol. 45, no. 3, pp. 107-115, doi: 10.1177/1833358316652060.

Attached Files
Name Description MIMEType Size Downloads

Title Use of the My Health Record by people with communication disability in Australia: A review to inform the design and direction of future research
Author(s) Hemsley, Bronwyn
Georgiou, Andrew
Carter, RobertORCID iD for Carter, Robert
Hill, Sophie
Higgins, Isabel
van Vliet, Paulette
Balandin, SusanORCID iD for Balandin, Susan
Journal name Health information management joural
Volume number 45
Issue number 3
Start page 107
End page 115
Total pages 9
Publisher Sage
Place of publication London, Eng.
Publication date 2016-12
ISSN 1833-3575
Keyword(s) electronic health records
health communication
personal health records
communication disabilities
health information management
health equity
Science & Technology
Life Sciences & Biomedicine
Health Policy & Services
Medical Informatics
Health Care Sciences & Services
Summary BACKGROUND: People with communication disability often struggle to convey their health information to multiple service providers and are at increased risk of adverse health outcomes related to the poor exchange of health information. OBJECTIVE: The purpose of this article was to (a) review the literature informing future research on the Australian personally controlled electronic health record, 'My Health Record' (MyHR), specifically to include people with communication disability and their family members or service providers, and (b) to propose a range of suitable methodologies that might be applied in research to inform training, policy and practice in relation to supporting people with communication disability and their representatives to engage in using MyHR. METHOD: The authors reviewed the literature and, with a cross-disciplinary perspective, considered ways to apply sociotechnical, health informatics, and inclusive methodologies to research on MyHR use by adults with communication disability. RESEARCH OUTCOMES: This article outlines a range of research methods suitable for investigating the use of MyHR by people who have communication disability associated with a range of acquired or lifelong health conditions, and their family members, and direct support workers. CONCLUSION: In planning the allocation of funds towards the health and well-being of adults with disabilities, both disability and health service providers must consider the supports needed for people with communication disability to use MyHR. There is an urgent need to focus research efforts on MyHR in populations with communication disability, who struggle to communicate their health information across multiple health and disability service providers. The design of studies and priorities for future research should be set in consultation with people with communication disability and their representatives.
Language eng
DOI 10.1177/1833358316652060
Field of Research 111799 Public Health and Health Services not elsewhere classified
1117 Public Health And Health Services
0807 Library And Information Studies
0806 Information Systems
Socio Economic Objective 920499 Public Health (excl. Specific Population Health) not elsewhere classified
HERDC Research category C1 Refereed article in a scholarly journal
ERA Research output type C Journal article
Copyright notice ©2016, The Authors
Persistent URL

Document type: Journal Article
Collections: Faculty of Health
Population Health
Connect to link resolver
Unless expressly stated otherwise, the copyright for items in DRO is owned by the author, with all rights reserved.

Version Filter Type
Citation counts: TR Web of Science Citation Count  Cited 10 times in TR Web of Science
Scopus Citation Count Cited 11 times in Scopus
Google Scholar Search Google Scholar
Access Statistics: 435 Abstract Views, 1 File Downloads  -  Detailed Statistics
Created: Mon, 25 Jul 2016, 12:10:06 EST

Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact