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Integrated respiratory and palliative care leads to high levels of satisfaction: A survey of patients and carers

Smallwood, N, Moran, T, Thompson, M, Eastman, Peter, Le, B and Philip, J 2019, Integrated respiratory and palliative care leads to high levels of satisfaction: A survey of patients and carers, BMC Palliative Care, vol. 18, pp. 1-8, doi: 10.1186/s12904-019-0390-0.

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Title Integrated respiratory and palliative care leads to high levels of satisfaction: A survey of patients and carers
Author(s) Smallwood, N
Moran, T
Thompson, M
Eastman, Peter
Le, B
Philip, J
Journal name BMC Palliative Care
Volume number 18
Article ID 7
Start page 1
End page 8
Total pages 8
Publisher BioMed Central
Place of publication London, Eng.
Publication date 2019
ISSN 1472-684X
Keyword(s) Attitudes
Dyspnea
Integrated care
Palliative care
Satisfaction
Survey
Summary Background: The Advanced Lung Disease Service is a unique, new model of integrated respiratory and palliative care, which aims to address the unmet needs of patients with advanced, non-malignant, respiratory diseases. This study aimed to explore patients' and carers' experiences of integrated palliative care and identify valued aspects of care. Methods: All current patients of the integrated service and their carers were invited to complete a confidential questionnaire by post or with an independent researcher. Results: Eighty-eight responses were received from 64 (80.0%) eligible patients and from 24 (60%) eligible carers. Most participants (84, 95.5%) believed the integrated service helped them to manage breathlessness and nearly all participants (87, 98.9%) reported increased confidence managing symptoms. One third of patients (34.4%) had received a nurse-led domiciliary visit, with nearly all regarding this as helpful. Most participants believed the integrated respiratory and palliative care team listened to them carefully (87, 98.9%) with opportunities to express their views (88, 100%). Highly valued aspects of the service were continuity of care (82, 93.2%) and long-term care (77, 87.5%). Three quarters of participants (66, 75.0%) rated their care as excellent, with 20.5% rating it as very good. Nearly all (87, 98.9%) participants reported that they would recommend the service to others. Conclusions: Patients and carers expressed high levels of satisfaction with this model of integrated respiratory and palliative care. Continuity of care, high quality communication and feeling cared for were greatly valued and highlight simple but important aspects of care for all patients.
Language eng
DOI 10.1186/s12904-019-0390-0
Field of Research 1110 Nursing
1117 Public Health and Health Services
HERDC Research category C1 Refereed article in a scholarly journal
Free to Read? Yes
Persistent URL http://hdl.handle.net/10536/DRO/DU:30158704

Document type: Journal Article
Collections: Faculty of Health
School of Medicine
Open Access Collection
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.