The Future of Disability Research in Australia: Protocol for a Multiphase Research Agenda Setting Study Smith-Merry, J, O'Donovan, MA, Dew, Angela, Hemsley, B, Imms, C, Carey, G, Darcy, S, Ellem, K, Gallego, G, Gilroy, J, Guastella, A, Marella, M, Mcvilly, Keith and Plumb, J 2022, The Future of Disability Research in Australia: Protocol for a Multiphase Research Agenda Setting Study, JMIR Research Protocols, vol. 11, no. 1, pp. 1-11, doi: 10.2196/31126. Attached Files Name Description MIMEType Size Downloads Title The Future of Disability Research in Australia: Protocol for a Multiphase Research Agenda Setting Study Author(s) Smith-Merry, J O'Donovan, MA Dew, Angela orcid.org/0000-0002-8800-5660 Hemsley, B Imms, C Carey, G Darcy, S Ellem, K Gallego, G Gilroy, J Guastella, A Marella, M Mcvilly, Keith orcid.org/0000-0002-9753-9031 Plumb, J Journal name JMIR Research Protocols Volume number 11 Issue number 1 Article ID e31126 Start page 1 End page 11 Total pages 11 Publisher JMIR Publications Place of publication Toronto, Ont. Publication date 2022 ISSN 1929-0748 1929-0748 Keyword(s) consumer-driven community-based research disability research disability studies disabled persons mixed methods research design research priorities Science & Technology Life Sciences & Biomedicine Health Care Sciences & Services Public, Environmental & Occupational Health RESEARCH METHODOLOGY Summary Background For people with disabilities to live a good life, it is essential that funded research in health and social care addresses their interests, meets their needs, and fills gaps in our understanding of the impact that services, systems, and policies may have on them. Decisions about research funding should be based on an understanding of the research priorities of people with disabilities, their supporters and allies, disability researchers, service providers, and policy makers working in the field. Objective The aim of this protocol is to describe the research design and methods of a large-scale, disability research agenda–setting exercise conducted in 2021 in Australia. Methods The research agenda–setting exercise involves 3 integrated phases of work. In the first phase, a previous audit of disability research in Australia is updated to understand previous research and continuing gaps in the research. Building on this, the second phase involves consultation with stakeholders—people with disabilities and their supporters and family members, the disability workforce, and people working within services and connected sectors (eg, aging, employment, education, and housing), academia, and public policy. Data for the second phase will be gathered as follows: a national web-based survey; a consultation process undertaken through the government and nongovernment sector; and targeted consultation with Aboriginal and Torres Strait Islander people, children with disabilities and their families, people with cognitive disability, and people with complex communication needs. The third phase involves a web-based survey to develop a research agenda based on the outcomes of all phases. Results We have started working on 2 parts of the research prioritization exercise. Through the research-mapping exercise we identified 1241 journal articles and book chapters (referred to as research papers) and 225 publicly available reports (referred to as research reports) produced over the 2018-2020 period. Data collection for the national survey has also been completed. We received 973 fully completed responses to the survey. Analysis of these data is currently underway. Conclusions This multi-method research agenda–setting study will be the first to provide an indication of the areas of health and social research that people across the Australian disability community consider should be prioritized in disability research funding decisions. Project results from all phases will be made publicly available through reports, open-access journal publications, and Easy Read documents. International Registered Report Identifier (IRRID) DERR1-10.2196/31126 Language en DOI 10.2196/31126 Field of Research 1103 Clinical Sciences 1117 Public Health and Health Services HERDC Research category C1 Refereed article in a scholarly journal Free to Read? Yes Persistent URL http://hdl.handle.net/10536/DRO/DU:30161282 Document type: Journal Article Collections: Faculty of Health School of Psychology Open Access Collection Related Links Link Description Link to full-text (open access)   Connect to published version Go to link with your DU access privileges   Connect to Elements publication management system Go to link with your DU access privileges     Unless expressly stated otherwise, the copyright for items in DRO is owned by the author, with all rights reserved. Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au. 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