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A Cohesive Research Approach to Assess Care-Related Quality of Life: Lessons Learned From Adapting an Easy Read Survey With Older Service Users With Cognitive Impairment

Phillipson, L, Smith, Louisa, Caiels, J, Towers, AM and Jenkins, S 2019, A Cohesive Research Approach to Assess Care-Related Quality of Life: Lessons Learned From Adapting an Easy Read Survey With Older Service Users With Cognitive Impairment, International Journal of Qualitative Methods, vol. 18, pp. 1-13, doi: 10.1177/1609406919854961.

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Title A Cohesive Research Approach to Assess Care-Related Quality of Life: Lessons Learned From Adapting an Easy Read Survey With Older Service Users With Cognitive Impairment
Author(s) Phillipson, L
Smith, Louisa
Caiels, J
Towers, AM
Jenkins, S
Journal name International Journal of Qualitative Methods
Volume number 18
Start page 1
End page 13
Total pages 13
Publisher Sage
Place of publication London, Eng.
Publication date 2019-01
ISSN 1609-4069
1609-4069
Summary New or adapted methods and tools are needed to ensure the voices of older people with cognitive impairment and dementia are included in evaluations of care services which aim to support their quality of life (QoL). In this study, cognitive interviewing practices were used with a group of 26 older service users with cognitive impairment from two service providers in New South Wales, Australia, to test and modify the Adult Social Care Outcomes Toolkit Easy Read (ER) survey to improve its suitability for this cohort. We used Antonovsky’s “sense of coherence” framework to describe our research approach and how it was adapted to provide a manageable, meaningful, and comprehensible experience for our participants. While the modified ER format made the survey more comprehensible and meaningful, it was the techniques of cognitive interviewing that made the research approach manageable. We argue that while ER does support the research process for older service users with cognitive impairment, combining ER pictorials with the qualitative interactions with the researcher, in particular cognitive interviewing strategies, is needed to support a cohesive approach to assess care-related QoL in this vulnerable group
Language eng
DOI 10.1177/1609406919854961
Field of Research 1110 Nursing
1607 Social Work
HERDC Research category C1 Refereed article in a scholarly journal
Free to Read? Yes
Persistent URL http://hdl.handle.net/10536/DRO/DU:30161297

Document type: Journal Article
Collections: Faculty of Health
School of Health and Social Development
Open Access Collection
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Every reasonable effort has been made to ensure that permission has been obtained for items included in DRO. If you believe that your rights have been infringed by this repository, please contact drosupport@deakin.edu.au.